A Man with ALS Regains His Voice: A Story of Love and Innovation
ALS and Communication Challenges
Amyotrophic lateral sclerosis (ALS) is a progressive neurological disease that affects the motor neurons in the brain and spinal cord. As the disease progresses, it can lead to difficulty with movement, speech, and swallowing.
For Don Moir, a farmer and father from rural Canada, ALS struck in 1999. Four years after his diagnosis, he was fitted with a ventilator and lost the ability to speak. This devastating loss left him unable to communicate with his loved ones in the way he once did.
Hope from Not Impossible Labs
While driving one day, Don’s wife, Lorraine, heard a radio interview with Mick Ebeling, the founder of Not Impossible Labs. Ebeling discussed the Eyewriter, a device that allows people who cannot move to create art using only their eyes. Inspired, Lorraine reached out to the team at Not Impossible Labs, hoping they could help her husband regain his voice.
Not Impossible Labs is a startup that leverages technology to improve the lives of people with disabilities. Javed Gangjee, an engineer and volunteer, began working with Don to develop a computerized version of the letter board he had been using to communicate.
A New Voice
With the new program, Don could script messages by making eye contact with each letter. The computer would then speak the words, allowing him to communicate more independently.
For the first time in over a decade, Don was able to express his love and gratitude to his wife. “I love you, Lorraine,” he said, his words echoing through the room. “I can’t imagine life without you. You have made the last 25 years fly by and the last 20 with ALS more bearable.”
The Power of Communication
Don’s story is a testament to the power of communication. Despite his physical limitations, he was able to overcome the barriers of ALS and reconnect with his loved ones.
The technology developed by Not Impossible Labs has not only given Don a voice but has also given him a renewed sense of purpose. He is now able to participate in conversations, share his thoughts and feelings, and express his love and support for his family and friends.
The Role of Innovation
The innovation behind the device that gave Don his voice back is a shining example of how technology can be used to improve the lives of people with disabilities. Not Impossible Labs is at the forefront of this movement, creating tools that empower individuals to live more fulfilling and independent lives.
Don’s story is a reminder that even in the face of adversity, there is hope. Through the power of love, innovation, and determination, we can overcome challenges and live our lives to the fullest.